Brain Tumors: Leaving the Garden of Eden--A Survival Guide to Diagnosis, Learning the Basics, Getting Organized, and Finding Your Medical Team
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Average customer review:Product Description
A guidebook for the 150,000+ people/ year and families affected by brain tumors. This book will help you learn the basics about diagnosis, getting organized and finding your medical team. Included are chapters on all major types of brain tumors & metastases, glossary, medications, using the Internet to search for information, and getting a second opinion.
"Brain Tumors:Leaving the Garden of Eden" is all about improving your odds by gathering information, & assessing your situation: What you need to do; what you need to know; what you can do now!
Product Details
- Amazon Sales Rank: #489082 in Books
- Published on: 2004-12-15
- Original language: English
- Number of items: 1
- Binding: Paperback
- 400 pages
Editorial Reviews
Review
"take comfort in having Dr. Zeltzer with you during your brain tumor journey." -- Naomi Berkowitz, American Brain Tumor Association, Chicago
..well-written, comprehensive "how-to" guide…immensely useful. This is an 'owners’ manual. …a'must-read' -- Steven Brem, M.D. H. Lee Moffitt Cancer Center Tampa, FL
Dr. Zeltzer digs out questions…patients are afraid to ask/discuss with their doctors -- Al Musella, DPM, President, Musella Foundation For Brain Tumor Research & Information, Inc.
About the Author
Paul Zeltzer MD is an expert and brain tumor specialist (Neurooncologist) for both children and adults. Thousands of loyal readers have received his thoughtful views on several websites and "chatrooms" via the Internet. He has 28 years experience as an academic oncologist and researcher at four leading University teaching hospitals. He is recognized particularly on subjects of immune therapies, alternative and complementary approaches and effects of the Internet on Healthcare. A sought-after speaker, he is frequently quoted on the Web and on broadcast media throughout the world. "Dr. Paul" is fluent in Spanish and English and has lectured worldwide. He has been an advisor to several hit television medical shows.
Customer Reviews
A must-read for anyone dealing with a brain tumor
This book helps guide you through the turmoil that comes with the diagnosis of a brain tumor. Unlike most diseases where you go to your doctor and let him / her make all of the decisions, dealing with a brain tumor is very different. You will be dealing with up to 20 different types of health professionals. You will be given choices that your doctor doesn't even want to make for you. Decisions that you make can greatly affect your chances of being a long term survivor.
You need all of the help you can get.
This book was written by one of the best neuro-oncologists in the world, drawing not only on his professional experiences dealing with his own patients at some of the most prestigious brain tumor centers in the USA, but also on his many years of participating in online support groups and answering questions from my website, Clinical Trials And Noteworthy Treatments For Brain Tumors.
Al Musella, DPM
President
Musella Foundation For Brain Tumor Research & Information, Inc
Virtualtrials.com
Absolutely essential
If you or a loved one are newly diagnosed with a brain tumor, this is the book you must read immediately and use as a reference throughout the process of dealing with the disease. I wish that it had been available when our daughter was diagnosed with glioblastoma multiforme early last year. With a disease of this complexity, you and your family will ultimately be responsible for coordinating treatment options, anticipating and managing side effects of medications, etc. To be an effective advocate you need to learn as much as you can as quickly as you can, and this book is the place to start. The medical care that our daughter has received has been uniformly excellent, but a vigilent and informed caregiving team is a vital component in managing her disease.
"Surviving Terminal Cancer" by Ben Williams is also excellent -- both books are required reading.
The quality of the information available and the dedication of the people who provide it is truly amazing. Dr Musella's website, www.virtualtrials.com, is another essential resource, particularly for information about the many new developments in brain tumor research and treatment. I believe that there is much reason for optimism, and that an empowered and informed community will play an important role in conquering this terrible disease.
An invaluable resource
This book was a perfect guide for me when I needed it most. Being diagnosed with a brain tumor has got to be one of the most daunting things a human can be faced with. On top of the shock, you'll quickly realize that the medical community can be a frustrating and inefficient entity to deal with while you're trying to make the most important decisions of your life. This book tells you how to take the bull by the horns and navigate through the murky waters of bureaucratic red tape. I followed the book's advice on keeping a folder with all my medical records and I took it to every appointment. While I was laying on a gurney waiting for an angiogram, a potentially dangerous procedure, I asked why it was taking so long to get started. The doctor said the hospital had misplaced my MRIs. I said that I had a copy on CD in my bag (something Dr. Zeltzer says everyone should do). His eyes popped open wide and he actually used my CD for the procedure. The nurse later told me that no one had ever done that. The book put me in control at a time when decisions like choosing the right doctors were literally a mater of life or death. My benign tumor has been removed for two and a half years and my life is very normal. I will never forget what this book meant to me.



